Helpful Links Page
Ovarian Cancer National Resource List:1.) American Cancer Society - The American Cancer Society is dedicated to eliminating cancer as a major health problem by saving lives, diminishing suffering, and preventing cancer through research, education, advocacy and service. The American Cancer Society is available to people facing cancer when and where they need help. Phone: 800-ACS-2345; www.cancer.org.
2.) Cancer Survivors Network - Created by and for cancer survivors and their families, this virtual community offers convenient accessibility to survivors, caregivers and all those touched by cancer. It is a welcoming, safe place for people to find hope and inspiration from others who have been there. Services include radio talk show conversation and interviews, individual stories, discussion forums, and more. www.cancer.org.
3.) American College of Obstetricians and Gynecologists - ACOG is dedicated to the advancement of women’s health through education, practice, research, and advocacy. ACOG provides an online physician directory as well as patient education materials on gynecologic cancer. Phone: 202-863-2518; Email: resources@acog.org; www.acog.org.
4.) CancerCare - CancerCare provides free professional support services, including counseling, education, financial assistance and practical help to people across the country. Services are available to people of all ages, with all types of cancer and at any stage of the disease. Phone: 800-813-4673; Email: info@cancercare.org; www.cancercare.org.
5.) SHARE - SHARE is a not-for-profit organization providing information hotlines for breast and ovarian cancer survivors in English and Spanish, peer-led support groups, and wellness, education and advocacy programs. It contributes to awareness regarding prevention, early detection, and research. Address: 1501 Broadway, Suite 704A, New York, NY 10036; Phone: 212-719-0364; Toll-free number: 866-891-2392; www.sharecancersupport.org.
6.) Society of Gynecologic Nurse Oncologists - The SGNO is an international organization of nurses and health professionals dedicated to the advancement of patient care, education and research in the field of gynecologic oncology and women’s health care. Address: 6024 Welch Avenue, Fort Worth, TX 76133; Phone: 800-446-3180; www.sgno.org.
7.) The Society of Gynecologic Oncologists – SGO is the leading organization of gynecologic oncologists in the U.S. Its purpose is to improve the care of women with gynecologic cancer by encouraging research and knowledge to raise the standards of practice in the prevention and treatment of gynecologic malignancies in cooperation with other organizations interested in women’s health care, oncology and related fields. Address: 230 West Monroe Street, Suite 710, Chicago, IL 60606; Phone: 312-235-4060; Email: sgo@sgo.org; www.sgo.org.
8.) The Wellness Community - The Wellness Community (TWC) is an international non-profit organization dedicated to providing free support and education for people with cancer and their loved ones. TWC helps people affected by cancer obtain vital skills to regain control over their lives, reduce feelings of isolation and to restore a sense of hope. Address: 919 18th Street, NW, Suite 54, Washington, DC 20006; Phone: 888-793-WELL; Email:help@thewellnesscommunity.org; www.thewellnesscommunity.org.
9.) Ovarian Cancer National Alliance - The Alliance is an organization whose mission is to conquer ovarian cancer by uniting individuals and organizations in a national movement. Advocacy, education and awareness constitute the main program areas. The Alliance is the main advocate for federal legislation, policy, funding, programs and support of ovarian cancer research on detection, diagnosis, and treatment. Phone: 202-331-1332; Toll-free number: 866-399-6262; Email: ocna@ovariancancer.org; www.ovariancancer.org;
10.) The Ovarian Cancer Research Fund - The Ovarian Cancer Research Fund (OCRF) is a non-profit organization dedicated to the formulation of early diagnostic treatment programs and research aimed toward the ultimate conquest of ovarian cancer. As OCRF strives to find a cure, it also seeks to support patients and their loved ones, as well as to raise public awareness and provide educational information, including resource materials and a free video about ovarian cancer. Address: 14 Pennsylvania Plaza, Suite 1400, New York, NY 10122; Phone: 212-268-1002; Toll-free number: 800-873-9569; Email: info@ocrf.org; www.ocrf.org.
11.) Ovarian Problems Discussion List - This e-mail discussion group gives women with ovarian cancer and related problems a chance to exchange information and support daily. Supporters and family members are also encouraged to join this group, which is sponsored by acor.org. To subscribe, go to www.acor.org, click on “mailing lists,” and locate the Ovarian Problems Discussion List. Follow the instructions to join. Email: ovarian-request@listserv.acor.org; www.acor.org.
12.) OVARIAN PLUS INTERNATIONAL: Gynecologic Cancer Prevention Quarterly - This newsletter provides timely information about international research, diagnosis, and treatments for ovarian cancer and other gynecologic cancers. It targets risk reduction, screening, early detection, psychosocial and policy issues. Published by a journalist with a strong family history of ovarian cancer, the newsletter contains practical tips based on true stories. A medical advisory board of prominent ovarian cancer researchers provides editorial review. PO Box 2831, Springfield, VA 22152-0831 csinnex@yahoo.com • www.monitor.net/ovarian 703/644-3162
13.) Patient Advocate Foundation – This national non-profit organization serves as an active liaison between patients and their insurer, employers and/or creditors to resolve insurance, job retention and/or debt crisis due to their diagnosis through case managers, doctors, and attorneys. The Patient Advocate Foundation seeks to safeguard patients through effective mediation to ensure access to care, maintain of employment and preserve financial stability. Phone: 800-532-5274; www.patientadvocate.org.
Centers for Disease Control and Prevention (CDC)800.CDC.INFO (800.232.4636)
• www.cdc.gov/cancer • cancerinfo@cdc.gov
CONVERSATIONS!
The International Ovarian Cancer Connection
806.355.2565
• www.ovarian-news.org • ovcanews@aol.com
EyesOnThePrize.org Support for Gynecologic Cancer
www.eyesontheprize.org • info@eyesontheprize.org
Force: Facing Our Risk of Cancer Empowered
866.288.RISK
• www.facingourrisk.org • info@facingourrisk.org
Gilda’s Club Worldwide
888.GILDA.4.U
• www.GildasClub.org • info@gildasclub.org • Fax: 917.305.0549
Gilda Radner Familial Ovarian Cancer Registry
800.OVARIAN
716.845.4503
• www.ovariancancer.com • gradner@roswellpark.org
Gynecologic Oncology Group
800.225.3053
• www.gog.org • kness@gog.org
Gynecologic Cancer Foundation (GCF)
312.578.1439
800.444.4441 (Information Hotline)
• www.thegcf.org • www.wcn.org • info@thegcf.org
In My Sister’s Care (IMSC)
202.607.1883
212.802.7686
• www.inmysisterscare.org • info@inmysisterscare.org
UNDERSTANDING OVARIAN CANCER
Lynne Cohen Foundation for Ovarian Cancer Research
877.OVARY.11 ( 877.682.7911)
• www.lynnecohenfoundation.org • info@lcfocr.org
National Cancer Institute Cancer Information Service
800.4.CANCER
• www.cancer.gov/cis • cisinfo@cancer.gov
National Coalition for Cancer Survivorship (NCCS)
301.650.9127
• www.canceradvocacy.org • info@canceradvocacy.org
National Ovarian Cancer Coalition (NOCC)
888.OVARIAN
• www.ovarian.org • nocc@ovarian.org
Office on Women’s Health
Department of Health & Human Services (OWH)
800.994.WOMAN • www.4woman.gov
Ovarian Cancer Canada
877.413.7970
• www.ovariancancercanada.ca • info@ovariancancercanada.ca
The list was prepared by the Gynecologic Cancer Foundation and the Ovarian Cancer Advocacy 08PCTSG19 2005 y Organizations.
